Well, it has been a while since I have been on this
page. Since my last visit, My little Rocky got hit by a car. Tore my heart out. Took a long time for me
to get over it. Some nice people gave me another Yorkie name Tator Tot. He is bigger then my Rocky was.
Then a few months later, I got another puppy, again, I call him Rocky. He is now 2 yrs old and Tator is 3 now.
Just 3 weeks ago, the people I got my first Rocky from called me and gave me a little girl yorkie named Yogi Bear. She
is 2 1/2. She is the sister to my first Rocky. Born a year apart from eachother w/same parents. She is such
a doll. Of course, all three of my babies are totally spoiled. And cute too. I Love them so much.
Since my last update, my fistula in my arm stopped working and ended up w/graft in leg.
Had problems w/it on and off. Then Last Oct. 4th. doctor did a revision and it worked up until this last Friday April
13th. 2012. Went to vascular center in Wichita and got it taken care of. Worked good enough for me to do a dialysis
treatment that day and when I went to bed, it stopped working again. Now I go back tomorrow, Monday to have it done
one more time. Hope it is good luck this time. If it don't do any better, may end back up in hospital for
another revision on my graft in leg. Well, I will stop this for now. Keep u posted on progress.
UPDATE: Oct. 31, 09
Halloween is over. My little Puppy Rocky enjoyed watching the children
come here for candy. I just bought one bag as we don't get very many. So it was cute watching him react to the
attention he was getting from all the children. He loved it.
Well, I go in Nov. 17, 09 to get my fistula brought to the surface so it won't
be so deep in my arm. Right now it is in real deep and no way would they be able to put the needles in the fistula for
dialysis. So this is why they need to bring it to the surface of the arm now that it is working good. Thay had
to put it in deep to get it to have a good start. Not looking forward to more pain, but what has to be must be.
I will be OK though. I just don't like the idea of more needles 3 times a week.
UPDATE: Oct. 22, 09
Well, today, I went to doctor in Wichita for him to check on the fistula he put
in a few weeks ago. He said it is doing well. Now he needs to go in again and bring the fistula to the surface
as he did it in deep in my arm so it could get a good start. Now it needs to be brought to the surface so I can do my
dialysis treatments when it heals good. That should take another 6 weeks for it to heal. I go in on Nov. 17th,
09 to get this done.
I am putting a web page on here for you all to go to so you can check it out.
I am needing car repairs, and in hopes you kind people out there will find it in your hearts to help me out.
UPDATE: Oct. 1, 2009
Well I have been on Diallysis now for a few months now. Some days are good,
some are not so good. But I will make it. Sept. 29th. the doctor did another fistula in my left arm this time.
So far it seems to be working. I need to excersise to keep it working. In about 8 weeks they will start using
it and eventually take the access line out of my chest. I need to be brave as I don't like needles and that is what
will happen when they start using the fistula. Due to a bad experience in Dodge City, KS, I am totally afraid of needles
and they hurt so bad. I was in hospital in Dodge City, KS and very sick. My IV messed up and the nurses couldn't
get it back in. They ended up calling in a person who was on call and that person was mad because she had to come in
and get my IV started. She is a person who puts people to sleep during surgery. I don't know how to spell it,
but her husband was one of my doctors. She came in drunk and was angry cause she had to come in and leave her party.
She took it out on me and poked me in both arms and hands and didn't care that she was hurting me. I started crying
and she told me to shut the F--- Up, I am not hurting you. I was having a party and I shouldn't have to come in and
do this. She finally said F--- it, and slammed my arm down on a arm board and said she was going into my main artery
in my arm and that is what she did. She didn't even clean up the blood and needles she caused while doing all this and
being angry because she had to come in, but she was on call. She knew she may need to be called in for a emergency.
God help me, I am glad I wasn't in surgery needing put to sleep. She could have killed me. She did get dismissed
for about 4 or 5 months. If I could remember her name, I should have sued her. But I sas sick and just wanted
to get well. This is why I hate and cry at the thought of needles. That happened in 1985, but it really left a
mark on my mind and I truely do get afraid. One needle poke, sometimes I handle, but any more then that, i start getting
upset.
UPDATE: July 17, 2009
Well here I am again. July 6th, I started Dialysis. Went into hospital,
they put a tub in my chest, did dialysis that day, stayed over night, another dialysis the next day then got to go home.
Went to dialysis center Wednesday and Friday of this week. Now it is 3 times a week. This is my 2nd. week.
I have my good days and I have my good days and my bad days. Today wasn't too bad. I am a tad tired, but
that is life. But I will keep my chin up and keep on going. So anyone who wants to contact me, will be nice
to hear from anyone. I am putting a Avon site up in case anyone wants to help me out and order.
UPDATE: June 12, 2009
I am now 61 years old.
I went to doctor a couple weeks ago, and he informed me that he is not going
to be able to help me anymore where my kideys are concerned. The injections I have been getting once a month aren't
helping now. He did say that he may try the injections every two weeks for awhile and see if it works, but he will let
me know June 22nd., 2009. I haven't had any iron transfussions for awhile. No blood transfussions either.
I was getting that quite often. But not sure yet. My kidney function has got down to 11 and he is getting worried.
I am hoping the way he talks that it will probably be about 4 months or so. Just depends on what he sees when
he does more blood work. I will never be able to have a kidney transplant because of my two ostomies on my stoach.
No room to get in there without messing up that surgery. I am just praying that I can stay as OK as possiable
for a very long time once I get on dialisys. I have so much to live for.
I am still needing car repairs so if my Mother needs to drive my car, she won't
get stranded, and get the airconditioner fixed in the car as Mom can't be out in the heat either because of her medical condition.
Well, July 23, 2008. Just a update to let you
all know that things have not changed too much. I may be going in for more Iron IV's and so far, my kidney function
is keeping stable. Last time it was staying between 10 and 13%, but as of yesterday, it went up two percent. Doctor
says not to expect miricals. So of course, I take my life one day at a time. Thank You again for reading my story.
This is truth, not fiction. This is too serious to lie about.
I started this about 5 years ago. I am just
keeping it updated. This is a update on: 4/18/08.
Hello, Well, I never thought I would ever do anything
like this. But I don't know what else to do. I truly hope you won't look down on me because I am asking for your
help.
My name is Sandy. I am 60 yrs. old, and on a very low disability income.
I will tell you something about myself. I was born without a rectum. From the time I was a baby, I have been having
surgery on and off for a deformity I was born with. By the time I was 6 or 7, I guess they thought their work was done,
and really, they should have done more surgery as I was growing to keep this corrected until I became an adult. Well
they didn't and I had problems all through my life with that. At the age of ten, I went into the hospital in a coma.
I remember at one point, the doctors came in and told my father there was nothing else they could do. It was too late
and they took the IV out of my arm. Doctors had given up on me. I had already went through the tunnel and what
a beautiful site like I have never seen before. I saw everything that was being done to me at that time. I remember
not being afraid at that time. I was at the pearly white gates of Heaven and Jesus picked me up and let me watch all
that was going on. My father was crying and said, don't die, your mommy and I Love and want you. I will never
forget that. I came back into my body and sat up and my father was so shocked, he looked like he had seen a ghost.
My Mother was at the door of my hospital room. Dad told Mom to get the nurses. The nurses got the doctors and
they put another IV in me and proceeded to care for me. It was a severe Kidney disease. I had surgery after surgery
on that and ended up with catheters in my kidneys from the time I was 10 till I was 16 years of age. Well by this time,
the doctors told my parents that I needed the tubes out of my kidneys, and put an ostomy on my stomach for my kidneys
to drain into. This was done in 1965 to 1966. I was in and out of the hospital and had surgery to construct this
for my bag on my stomach at least a couple times a month for 11 months. That worked for a long time. But yet I
continued to have problems with my bowels, as my rectum never would do as it was intended. I kept having problems through
the years. In 1984, doctors decided to reconstruct my urostomy a little different. Then at that time they also
told me they had to put a colostomy on my stomach. Doctors said I should have been dead 20 years before this because
of my rectum not working as it should. All the pain for so many years. Then doctors decided to put a colostomy
and a urostomy for my kidneys too. Now I have two ostomies. So all this surgery took 10 hrs. 15 min. It
was fine until 1986 when my colostomy messed up on me, and I had to have more surgery. That finally got corrected and
on down the road, still doing not too badly and still alive, keeping doctors guessing.
In Oct 1997, I got in a car accident. That messed me up. That is
when I found out that I have degeneration of the spine. The accident activated it because I didn't have any problems
with back pain before that. Started getting arthritis after that. In 2001, I was on my way to have a stress test
done for my heart, and I got in another accident. No heart test that day, went to the hospital in an ambulance instead.
I was so afraid. The arthritis just got worse. The weather changes and it just kicks the arthritis. Because
of my kidneys even now, and high blood pressure, I can't take anything except Tylenol and Tylenol Extra Strength. I
try using creams and ointments to relieve the pain.
Well, here I go again! 2005, July 18th., I had surgery on my arm for a fistula for kidney dialisys.
Just went to doctor yesterday, Aug. 5th., to have it checked out and it is not doing what it is suppossed to do.
I will go back in a month and if it is not doing better, it will get x-ray and if doctor is not happy with
what he sees, he goes back in and tries something else. Not looking forward to this at all. Well as this never
worked out, eventually I will get a tube grafted in my arm and a pick line in my chest untill my arm heals and is ready
to use. This will take at least 3 months to heal before they can use it. It has been a year since the fistula
didn't work, and my kidney function is fluctuating between 13 to 16 %. When it gets down to 10% and stays,
then they will start prepping me for another fistula for dialisys I am really praying that this
one takes so I don't need to go do this over again. This is so depressing for me.
I used to help people out with their needs and now that I have all these problems,
I can't help other people or even babysit anymore to get extra cash. I was doing OK money wise until all this happened.
Then I ended up picking and choosing what I could and could not pay. (This has changed somewhat for me for a while
anyway.) I let a very nice car go back because I couldn't pay for it.
Needless to say, I do have bills to pay and not enough to pay them. (I
fianlly got lucky and found out that Liberty could get my ostomy supplies for me, and I actually am able to get what
I need now without worry.) There are still things I need help with though. My insurance won't pay for my 3M paper
tape, 1" and 2" size that I use plus Benzoin which helps the stomahesive wafers stick to my stomach a little better.
I do grocery shoping at Wal-Mart, and that is where I try and buy my clothing, as I need stuff to fit me loose and comfortable
because of my ostomies. Needing personal items I don't have money to get.
*June 12, 2009 Updated this small section.)
I have a dream of someday being able to get a small pull camper such
as a Hi-Lo or a Arolite type, something of that sort, so I could try and use it to do flea market type stuff, as
I have tables. A camper that won't be heavy that I can set up on my own. (Me, Little Miss Independant). (:-) It was nice when I was able to make extra money
like that for stuff I needed. And with a camper of some sort, I would have the privacy of my own little space
in case I needed to close and change bags or whatever I need. I even want to be able to go camping to lake
before I get where I can't do anything anymore. Yeh! Hey, Wow, maybe someone will have camper they could
donate to me as a gift. Be like winning a small lottery Huh? What a fun dream. (:-) (:-)
Yeh, it is silly, and knowing that is a impossiability, it is still a fun thought. It is nice to dream, and though
it may never become a reality, I can still dream. I guess after all that I have went through in life, I have the right
to dream even if it is out of my reach.
The most beautiful part of my world is that God has kept me alive and even though
I have pain and lots of medical problems, only God knows how grateful I am to still be here, to be happy, though my friends
and family don't have it to help me out. I have their Love and Prayers, and they are there for me to laugh and such.
In 1973, I adopted a little girl from So. Soul Korea, then in 1978, I adopted
a little baby boy from So. Soul Korea. He was 1 and she was 3 when I got them. They were so adorable. Very
much loved, and I still do love my children. I am so very blessed to have been able to adopt my children.
June 12, 09 Update: (The twins are now 2 and my grandaughter will be 7
this month.)
New News: My son and his wife just had a new set of twins. A little
boy and little girl May 21, 07. And my daughter has her little girl which is now 5 years old. I only seen her
when she was a year old, and never saw the twins yet.
So if you can help me, I would truly apprecieate it, and if you don't want to
send money, maybe you would be willing to send me a lottery scratch off ticket and maybe I would be lucky with that, and
if you can't, your prayers would also be appreciated. God Bless All of you out there.
New news: In Nov. of 2008, I had a biopsey done on both sides of my temples
to take a peice of vein out to see what was wrong. I was losing my eye site and having real bad headaches, losing my
balance, falling, and that was so scary. That test turned out OK. Cut from my temple to my cheek bone, had stitches
there. Glad it turned out OK though. But doctors found out that I had been having mini strokes. It was so
bad for me. I was scared, and they did some surgery Dec. 18, 08 for a corotid artery which was 95% blocked. Got
home 2 days before Christmas. Lots of pain, but now, I feel better. I couldn't even see the computer, to write
checks, driving was even bad. I needed help there. Thank God for friends and family. I am feeling better
now. Still am having all my iron IV's and at time blood transfussions, and two injections for the kidneys every 2 weeks.
Needles, I don't like them. Hey, I'm alive. I need to stop complaining huh? (:-) I truely do realize
that there are people out there who are a lot worse off then me.
